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Summary:

The director shall give health facilities 15 days notice to make available to authorized program staff, the medical records of children diagnosed with birth defects and the medical records of their mothers. The medical records of mothers having miscarriages or stillborns shall also be made available.

Summary:

All information collected for birth defects monitoring program shall be confidential and used only for the purposes stated. Access to such confidential information shall be limited to authorized program staff and persons with valid scientific interest who agree in writing to maintain confidentiality

Summary:

Birth defects data created pursuant to the Birth Defect Monitoring Program must be kept confidential.

Summary:

The department shall maintain a record of all persons given access to confidential birth defects monitoring program information including: the name of the person authorizing access, the person given access, dates of access, and the specific purpose for which information will be used.

Summary:

Before birth defects monitoring program information is disclosed to any other person, agency or organization, the requesting party must demonstrate to the department that the entity has established procedures and has the ability to maintain confidentiality.

Summary:

The confidential information under the birth defects monitoring program shall not be available by subpoena. Confidential information may not be disclosed, discoverable, or compelled to be produced in any court proceeding nor is it admissible as evidence in any court proceeding.

Summary:

An individual shall have access to birth defects monitoring program records pertaining to them, pursuant to the IPA, Civil Code 1798.

Summary:

(1) All information pertaining to umbilical cord blood samples collected and used by the Birth Defects Monitoring Program shall be confidential and used only for the purposes of the program. Confidential information access shall be limited to authorized persons who agree in writing to maintain the confidentiality of information. (2) The department shall maintain a record of all persons who access such confidential information.

Summary:

To ensure security of a donor's personal information the CPHS shall determine the following have been met before releasing information for research purposes: Birth Defects Monitoring Program contractors or other entities have a plan sufficient to protect personal information from improper use and disclosures, contractors or other entities have a plan sufficient to destroy or return all personal information when it is no longer needed, and contractors or other entities have provided written assurances that personal information will not be reused or disclosed in an unauthorized manner. Furthermore, CPHS shall determine whether the requested information is needed to conduct the research, permit access to information only if it is needed for the research, permit access only to the minimum necessary information needed, require subject codes if research can be conducted without social security numbers, and require the agency to conduct a portion of data processing to minimize the release of personal information.

Summary:

Confidential birth defect data may be disclosed to researchers with valid scientific interest meeting review, protocol and confidentiality standards

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